"We've met too many other families and too many other beautiful children, who have Niemann-Pick Type C who really need to be saved." - Mike Parseghian

Vtesse Secures Additional $17 Million in Series A Extension to Support Further Product Development and Expand the Ongoing Clinical Trial of VTS-270 for the Treatment of Niemann-Pick Type C1 Disease

For more information regarding Vtesse’s pivotal Phase 2b/3 clinical trial, including the current list of participating study sites, visit


The University of Notre Dame launches the Ara Parseghian Medical Research Fund


In 2010, the University of Notre Dame and the Ara Parseghian Medical Research Foundation formed a partnership dedicated to finding a treatment for Niemann-Pick Type C (NPC).  Through this partnership the University and the Foundation jointly fundraise for NPC research and support the administration of grants, internally and externally, to researchers around the globe.

Now, the University is poised to launch the Ara Parseghian Medical Research Fund that will take on the roles and responsibilities of the Foundation and drive the Foundation’s fundraising and research efforts to find a cure.  The University is also pleased to announce Sean Kassen, PhD, as the new director of the Ara Parseghian Medical Research Fund.

Over the next several months the foundation will be moving all of these functions from the granting process, marketing/communication, and fundraising efforts to Notre Dame.  

Please know that Coach Ara Parseghian as well as Mike and Cindy Parseghian will continue to be actively involved in fundraising and supporting the new Ara Parseghian Medical Research Fund at Notre Dame for many years to come.



Join us for the Parseghian Classic in 2017!

Benefiting Niemann-Pick Type C disease research

June 23-26, 2017

Email Sean Kassen at for more information


Parsegihian Classic Benefitting Niemann-Pick Type C Research at the University of Notre Dame

Check out Photos from this year's Parseghian Classic


Lakeshore Middle School Joins the Fight for a Cure!

Thank you to the students of Lakeshore Middle School located in Stevensville, MI.  Every year the students, faculty, and staff host fundraisers to raise $s for the Ara Parseghian Medical Research Fund.  They put on a range of events including a pie throwing contest where students can make a donation to throw a pie at their teacher!  This event alone raised over $1000 to support NPC research efforts. 

It is inspiring to see students at a young age engage in philanthropic endeavors and we are proud of the Lancers for their efforts.

Pie Contest

Child Image

A Legacy of Hope

From beautiful identical twins to aspiring firefighter, the children affected with Niemann-Pick Type C will inspire you with their stories of hope and courage.

Read More

Donate Now!

Join the Fight

The Parseghians, Notre Dame and the families that battle Niemann-Pick Type C everyday need your help and support in the fight against NPC.

Join the Fight - Donate Now

Ara Face

A Message From Ara

I am asking for your support and that of your family and friends as we commit to victory against Niemann-Pick Type C, the neurodegenerative disease that has claimed the life of my three youngest grandchildren. 

Read Ara's full statement

About NPC

Niemann-Pick Type C (NPC) is a rare and deadly neurodegenerative childhood disease that primarly strikes children.
Learn more about NPC.

Notre Dame, in partnership with the Ara Parseghian Medical Research Foundation, is actively engaged in research seeking a cure for NPC.
Learn more about our efforts

Support our research - Donate Now

Like us on Facebook 

Follow us on LinkedIn  and Twitter