"We've met too many other families and too many other beautiful children, who have Niemann-Pick Type C who really need to be saved." - Mike Parseghian

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A Legacy of Hope

From beautiful identical twins to aspiring firefighter, the children affected with Niemann-Pick Type C will inspire you with their stories of hope and courage.

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Join the Fight

The Parseghians, Notre Dame and the families that battle Niemann-Pick Type C everyday need your help and support in the fight against NPC.

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Ara Face

A Message From Ara

I am asking for your support and that of your family and friends as we commit to victory against Niemann-Pick Type C, the neurodegenerative disease that has claimed the life of my three youngest grandchildren. 

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About NPC

Niemann-Pick Type C (NPC) is a rare and deadly neurodegenerative childhood disease that primarly strikes children.
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Notre Dame, in partnership with the Ara Parseghian Medical Research Foundation, is actively engaged in research seeking a cure for NPC.
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